Publication details

European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences

Authors

VRY Julia GRAMSCH Kathrin RODGER Sunil THOMPSON Rachel STEFFENSEN Birgit F. RAHBEK Jes DOERKEN Sam TASSONI Adrian BEYTÍA María de los GUERGUELTCHEVA Velina CHAMOVA Teodora TOURNEV Ivailo KOSTERA-PRUSZCZYK Anna KAMINSKA Anna LUSAKOWSKA Anna MRÁZOVÁ Lenka MOKRÁ Lenka STRENKOVÁ Jana VONDRÁČEK Petr GARAMI Marta KARCAGI Veronika HERCZEGFALVI Ágnes BUSHBY katherine LOCHMÜLLER Hanns KIRSCHNER Janbernd

Year of publication 2016
Type Article in Periodical
Magazine / Source Journal of Neuromuscular Diseases
MU Faculty or unit

Faculty of Medicine

Citation
Doi http://dx.doi.org/10.3233/JND-160185
Field Neurology, neurosurgery, neurosciences
Keywords Duchenne muscular dystrophy; standards of care; corticosteroid treatment; functional status
Description Publication of comprehensive clinical care guidelines for Duchenne muscular dystrophy (DMD) in 2010 was a milestone for DMD patient management. Our CARE-NMD survey investigates the neuromuscular, medical, and psychosocial care of DMD patients in Europe, and compares it to the guidelines.

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