Publication details

Registry of inherited bleeding disorders in Poland - current status and potential role of the HemoRec database

Authors

ZDZIARSKA Joanna CHOJNOWSKI K. KLUKOWSKA A. LĘTOWSKA M. MITAL A. MUSIAŁ J. PODOLAK-DAWIDZIAK M. WINDYGA J. OVESNÁ Petra BRABEC Petr ZAWILSKA Krystyna

Year of publication 2010
Type Article in Periodical
Magazine / Source Haemophilia
MU Faculty or unit

Citation
Field Oncology and hematology
Keywords HemoRec; haemophilia; registry
Description We present data collected in HemoRec, an Internet-based platform implemented in 2006 in 15 haemophilia treatment centres in Poland and compare them with the national registry of inherited bleeding disorders established since 1991 at the Institute of Haematology and Blood Transfusion in Warsaw. We also analyse the current status of haemophilia treatment in Poland as well as future perspectives. Data on 1102 patients registered in HemoRec were analysed and compared with 4294 patients in the national registry (status as at 17.08.2009).

You are running an old browser version. We recommend updating your browser to its latest version.

More info