European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

• Authors: BLAY J.Y.; CASALI P.; BOUVIER C.; DEHAIS C.; GALLOWAY I.; GIETEMA J.; HALÁMKOVÁ Jana; HINDI N.; IDBAIH A.; KINLOCH E.; KLUMPEN H.J.; KOLAROVA T.; KOPECKOVA K.; LOVEY J.; MAGALHAES M.; OSELIN K.; PIPERNO-NEUMANN S.; RAVNSBAEK A.; ROGASIK M.; SAFWAT A.; SCHEIPL S.; SECKL M.; TAYLOR J.; TEMNYK M.; TRAMA A.; URBONAS M.; WARTENBERG M.; WEINMAN A.
• Year of publication: 2021
• Type: Article in Periodical
• Magazine / Source: ESMO OPEN
• MU Faculty or unit: Faculty of Medicine
• Web: https://www.sciencedirect.com/science/article/pii/S2059702921001344?via%3Dihub
• Doi: http://dx.doi.org/10.1016/j.esmoop.2021.100174
• Keywords: ERN; European Reference Network; EU; European Union; EURACAN; ESMO; solid cancers
• Description: A better understanding of the biology of rare cancers, an improved access to optimal diagnosis, to effective therapies, and to evidence-based treatment guidelines will all improve the outcome of patients with rare cancers. Still, disparities exist across Europe between countries and regions, with heterogeneous patient pathways, and different points of access contacted for initial health care management. Health migration issues also need to be addressed to reduce inequities in care for the European patient.

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