Publication details

Achieving Thoracic Oncology data collection in Europe: a precursor study in 35 Countries

Authors

RICH Anna BALDWIN David ALFAGEME Inmaculada BECKETT Paul BERGHMANS Thierry BRINCAT Stephen BURGHUBER Otto CORLATEANU Alexandru CUFER Tanja DAMHUIS Ronald DANILA Edvardas DOMAGALA-KULAWIK Joanna ELIA Stefano GAGA Mina GOKSEL Tuncay GRIGORIU Bogdan HILLERDAL Gunnar HUBER Rudolf Maria JAKOBSEN Erik JONSSON Steinn JOVANOVIC Dragana KAVCOVA Elena KONSOULOVA Assia LAISAAR Tanel MAKITARO Riitta MEHIC Bakir MILROY Robert MOLDVAY Judit MORGAN Ross NANUSHI Milda PAESMANS Marianne PUTORA Paul Martin SAMARZIJA Miroslav SCHERPEREEL Arnaud SCHLESSER Marc SCULIER Jean Paul SKŘIČKOVÁ Jana SOTTO-MAYOR Renato STRAND Trond Eirik VAN SCHIL Paul BLUM Torsten Gerriet

Year of publication 2018
Type Article in Periodical
Magazine / Source BMC Cancer
MU Faculty or unit

Faculty of Medicine

Citation
Doi http://dx.doi.org/10.1186/s12885-018-5009-y
Keywords Lung Cancer; Epidemiology; Audit; Data collection; Datasets
Description BackgroundA minority of European countries have participated in international comparisons with high level data on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer services can aspire.MethodsUsing an established network of lung cancer specialists in 37 European countries, a survey was distributed in December 2014. The results relate to current practice in each country at the time, early 2015. The results were compiled and then verified with co-authors over the following months.ResultsThirty-five completed surveys were received which describe a range of current practice for lung cancer data collection. Thirty countries have data collection at the national level, but this is not so in Albania, Bosnia-Herzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to well-established electronic databases with links to census data and survival analyses.ConclusionUsing a network of committed clinicians, we have gathered validated comparative data reporting an observed difference in data collection mechanisms across Europe. We have identified the need to develop a well-designed dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality data for clinical research.

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